MT McGuire Books

The days when it drives you crazy! #dementia

Today, I’m going to explain some frustrations about looking after vulnerable elderly family members. Here they are:

  • Masses of frustrating administrivia.
  • The whole thing is a monumental time suck. You’ll find yourself wondering how the fuck they ran their lives before you and the care team came along to do it for them.
  • If you are going to allow the vulnerable person any independence, there will be slip ups. You will not believe how comprehensively they can stuff things up and you will have to do a lot of gatekeeping and/or clearing up.
  • Things will also stuff up randomly with monotonous regularity.
  • You will need to remember a lot of things for them.
  • Keeping them social and independent may involve covert surveillance from the wings, so to speak, so you can fix any bog ups quietly in the background, or at the least, see them coming. That may feel like spying or going behind their back. It isn’t. You’re just supporting them so they can be independent. Hold onto that when it gets tough, my lovelies. Because letting them be as independent as possible is important.
  • Aim to let the person have as much independence as is humanely possible, for as long as possible because however vulnerable they may be, they are not children, and allowing them to take responsibility for things is great for their confidence if they are supported the right way.
  • You will be amazed how crass people can be when presented with a dementia sufferer.
  • You will be amazed how lovely people can be when presented with a dementia sufferer.
  • There may be times when you feel trapped and cornered by the crushing weight of the responsibility and will wish that you could just run away and never return.
  • Sometimes you’ll wonder if they wouldn’t be better off dead. It doesn’t matter how ableist that is, it’s going to happen especially if one of them has told you, repeatedly, that  they hope they will die, ‘before I lose my marbles. I can handle pain, but I don’t think I could bear that, or knowing how awful it will be for you.’

In short you will have many thoughts that may not be pleasant but try not to beat yourself up because I’d guarantee that most of them are perfectly natural. You have to accept that your negative feelings are as natural as the positive ones. You have to accept yourself and look after yourself as well as them. Because if you go down, everything does!

When it comes to the time, you won’t mind putting the time in, and actually, most days, you’ll feel that it’s an honour. But on other occasions you may be roundly cursing your loved ones, especially if you have to drop everything and sort out whatever mess they’ve got themselves into. It’s nothing to be upset about when that happens so long as you don’t do it in front of them, because you’re human, and there will be times when it and they drive you buggy, no matter how much you love them.

Case in point, this week. It’s has been a bit hectic. Mum has reached the stage when we should really be activating the lasting power of attorney over her finances as well as Dad’s but if we do that, she can’t have a cheque book or bank card and neither can I. Running someone’s day to day finances and shopping needs from over 100 miles away isn’t going to be easy if none of them have access to a cash point and Mum can’t pay for anything by cheque either.

Sure, we can do it, but it will involve transferring hundreds of pounds to my own bank account every week and getting them out, putting them in an envelope and taking them down to my parents’ place. To be honest, I don’t fancy walking about with £500 plus on board, even in my quiet market town. Then, we have to hide the cash at Mum and Dad’s. We can put it in the safe but their having all that cash sloshing about is still not a prospect I relish.

Also even if I did it, what happens when I go away on holiday?

God bless my Mum, she managed to spend nearly £300 on some manure the other day. It’s excellent stuff, but she didn’t really need 36 bags. She used to, because she used to use a lot of it and would pass it on to friends. But not anymore. After that, and other scares, and a brief discussion with the carers we decided we’d hide the cheque book and card in the safe. Needless to say, when I looked in there, I found a bunch of cash I’d put in for emergencies while I was away on holiday a year ago — this was at a point where we were trying to have me bring cash each week and it wasn’t working. Obviously, there were four old tenners, so I had to put the new ones from my wallet in and take the others home where I could go into ‘any bank’ to swap them.

When I got home after three and a half hours of joy round the M25, I rang the fellow who sold her the manure. He wasn’t there so I left a message.

He didn’t call back until the next day and was extremely understanding but couldn’t really do much more than give us a discount and promise not to call again next year. I’ve had at least three bags of his manure, via Mum, so I do know he is legit but it was a pity. He also rang me just as McMini and I were leaving the house and it took us half an hour to sort it out. Half an hour that I didn’t really have.

Having agreed that Mum and Dad would have to keep the manure, but that he’d tear up cheque and I would pay a reduced sum by BACS, the next day, McOther then pointed out that I should wait to pay him until he’d sent the cheque back. Or stop it and then pay him. So then I had to stop the cheque.

However, HSBC’s Indian call centre came up trumps here. They still can’t pronounce the name McGuire but they are now more intuitive. Today I spoke to a lady who stopped the cheque for me and then, when I explained why I was stopping it, she waived the fee. Last time, when I was checking that there wasn’t a standing order pending for an insurance policy on her white goods that Mum had bought and I’d cancelled, the guy put a note on that no standing order should be approved without asking me. A stark contrast to the bastards at NatWest who would only change Mum’s old tenners if I had an account with them. Yes, after the thirty minute delay of the call with the manure man, it took us another fifteen to find a bank in the centre of town who’d swap the stupid tenners. Thank heavens there’s a Santander, where, ironically, I have an account but the teller swapped it all over without even asking if I do.

So the moral of this story appears to be don’t bank with NatWest, they’re a bunch of cAROOOGAHts.

It looks as if the sucker’s list Mum and Dad are on has just changed hands again and the ‘call blocker’ bastards are phoning every day, along with people ringing to say that the TV/Washing Machine/insert white goods here ‘insurance’ policy is due when there isn’t one. The former are scamming bastards out to rip off the vulnerable. The latter are selling worthless, overpriced services by cold calling people who are on the Telephone Preference Service (which is punishable by a £5k fine) but they are at least legitimate companies with websites and directors registered at Companies House even if their corporate ethics are in a fucking mess.

All of them call themselves something generic which is searched for lots on Google; Home Insurance Services or Call Technology Services, Home Services Limited or the like, things that will ensure any internet search for a record of their existence is buried under pages and pages of results. The other trouble is, if you are kind of person who purchases a suckers list in the first place, you’re not going to worry about selling it on with records that are duff when you’re done. As a result, every three months or so, Mum and Dad get a massive surge of these scam calls and then, as the shit‐heads realise there are gatekeepers, the calls fall away until the list is sold on again.

Bastards.

However, I have a plan for the next call blocker selling weasel who phones when I’m at my parents. It’s going to be a gas! I’ll let you know how it goes.

I have a cunning plan … hnur, hnur, hnurrrrr.

 

 

 

 

Posted July 28, 2018 and visited 399 times, 3 so far today

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